Matilda's Magical Day

Aug, 15 2014

A magical day for a beautiful girl. 

Despite the rain and the wind the people of Preston came out in force on Sunday to help raise money for Batten's Disease, and in particular, one special little girl named Matilda. 

Matilda is a truly beautiful little girl who suffers from this heartbreaking disease. 

Batten disease is a neuro-degenerative disease which causes an apparently healthy child to lose the ability to talk, walk eat and see. As if this wasn't bad enough, children with the disease suffer from progressive deterioration of the brain and nervous systems. Consequently, children with Batten disease eventually become dependent on others and unfortunately pass away at a young age. 

The day was predominantly organised by Matilda's mother, Melanie, who, let me tell you, did an absolutely amazing job. Melanie is a true inspiration to many people, and not just to mother's, I too was inspired by her sheer confidence, determination and general personality. Even though I only got to speak to Melanie very briefly, her love for her daughter and passion for the fundraising was clearly evident. I got honour of meeting Matilda, who is an absolutely beautiful little girl. I also spoke to a few of her family members who were all absolutely lovely people and evidently willing to do anything for anyone. 

The Lancashire Evening Post said that the event would be a 'family fun day', and that it certainly was. The main field on Avenham Park was taken over by various stalls, entertainment, a fairground and let's not forget It's A Knock Out. 

There were stalls selling beautiful gifts and crafts alongside information stalls, such as the one from Batten Disease Family Association (BDFA). At the BDFA stall they were selling wristbands to raise awareness and also had a lovely lady who was willing to answer any questions from anyone about the disease. Entertainment was provided by some amazing local bands, Rock FM radio and two groups of incredibly talented young dancers. Several teams from various business' also took part in It's A Knockout, which, I have to say, was brilliant to watch. All the teams did very well especially in aid of what is a truly great cause. 

The atmosphere on the park was fantastic and seeing the wealth of people who fought against hurricane Bertha to be at the event was remarkable. People gathered on Avenham Park and demonstrated the true meaning of what it means to be a community. And as a community, we raised money for what is an absolutely worthwhile cause.