Charles Bonnet Syndrome has helpline for sufferers.

Charles Bonnet Syndrome has helpline for sufferers.

Apr, 27 2021


Having a serious health condition can be an isolating experience. At times the sufferer will endure symptoms personal to them and it may feel like they’re alone in world under their debilitating condition. 
 
Charles Bonnet Syndrome (CBS) causes people to experience visual hallucinations ranging from simple shapes and dots and colours to detailed pictures of people, animals and insects. 
 
The condition surfaces from pre-existing sight loss such as age related macular degeneration or cataracts. A lot of people may be diagnosed with it and thanks to the recent storyline in ITV soap Coronation Street it has been made more aware to the public domain.
 
Now sight loss charity Galloway’s in Preston has launched a telephone peer support group for people with Charles Bonnet Syndrome. The group allows people across the Lancashire and Sefton district who have CBS to meet over the phone through the Galloway’s Talking Together service. 
 
Majorie, began having  hallucinations last September and she  expressed her joy in how the helpline has contributed to her happiness, 
 
“Galloway’s is a wonderful organisation and I am very grateful for its support. As I listen in on the Charles Bonnet peer support group on my telephone, it is nice to chat to people experiencing the same things as me”.
 
The support group and it’s additional work has been made possible thanks to funding from a variety of sources. This includes a grant of £120,330 from The Julia and Hans Rausing Trust’s Charitable Survival Fund and £20,009 from The National Lottery Community Fund. 
 
Pam Whitaker, a sight loss advisor at Galloway’s has been leading the CBS peer support group and she candidly shares the positive benefits of the talk line, 
 
“ We are really pleased to be able to provide peer support for people with Charles Bonnet Syndrome. Some people never talked about it before, so they have found it really helpful joining this safe environment where others understand”. 
 
The CBS peer support is delivered over the telephone through the Galloway’s Talking Together programme on the third Tuesday of the month at 11am . 
 
For more information simply email talking together@galloways.org.uk or call 01772 744 148. 
 
Don’t suffer alone with this debilitating condition. 
 
^Alex Ashworth CCG UK Blogger